Bad Pain Days

I wanted to do a quick check in with y’all.

This morning I went on walk with my husband to some fresh air after a hard night.

Yesterday I experienced the worst pain I have had in months. It can be very discouraging when the pain becomes so bad that it hurts to breathe. Watching food network and hanging out with my husband always helps. When it gets that bad, all you can hope for is a distraction. I laid my hand on top of his because holding hands hurts too much.


He successfully made me laugh, brought me water, and was there for me emotionally. I’m so thankful that I have such an incredible support system. I don’t know what I would do without him.
The best advice I’ve found is to take one day at a time. It can be so easy to get caught up in the future. My mind starts thinking,
“Is this my forever?”
“Will I always be in pain?”
“Will this illness get in the way of me living my life how I want to?”
The list goes on and on. What I am trying to learn is that I can’t control my pain levels. No matter how much I obsess about the future, it won’t change anything.
It doesn’t help to live in fear of bad days. So what can I do? Learn to let go.

I am reminded of one my favorite quotes from Harry Potter. I have been playing it on repeat in my mind this morning and it has brought me peace.

“What’s coming will come and we’ll meet it when it does” – Hagrid

  1. Your piece of advice is right on target! If we spend too much time thinking about the future when we have a chronic illness it can become overwhelming. If we worry too much about the future, we can strip the joy out of TODAY.

  2. I can so relate!! My husband and I like to hold hands to fall asleep, but so much of the time even that hurts, so I just lay it on top of his. Here’s hoping you’re able to let go of the pain. Gentle hugs!

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